Representative examples of typical cases
No actual cases, representative only. Drawn from the many 100s of children and young people we help across all regions over many years.
Visual impairments include:
Uveitis, Optic Lesion, Medically Unexplained Vision Loss, Retinal Dystrophy, Visual Impairment (total loss), Cone Dystrophy, Glaucoma, Sarcoidosis, Bilateral Visual Field Defect, Ocular Surface Damage, Retinitis Pigmentosa, Oculocutaneous Albinism.
Many appointments are by video or telephone.
Most involve engagement with educational establishments, many with parents and carers, some are over an extended period, which can be many years as issues arise.
Young person with vision loss. Disengaged from education. 1:1 work alongside CAMHS, offering support to adapt clinical work and formulate impact of eye condition. Active involvement with educational establishment.
Young person with vision loss. Individual sessions to normalise, validate experiences, increase awareness of feelings, teach some coping strategies, and help manage emotions, especially anxiety. Liaison with educational establishment to increase understanding about diagnosis, and to support with implementing strategies.
Young person with visual impairment. Large scale coordination with different clinicians in order to support planning of medical procedures. Principles form Cognitive Behavioural Therapy being used: in particular graded exposure.
Young person with visual impairment. Significant level of comorbidities: sleep, eating, risk, school refusal, regression. Liaison with family, educational establishment. Ongoing.
Regular meetings with a young person with visual impairment. Supporting adjustment to sight loss, feelings of anger and managing the additional challenges now being faced, particularly in terms of work and exam pressures.